Tuesday, December 2, 2008

Long overdue update

I decided to change the name of this blog because I feel since I have been in remission for 10 months I no longer have leukemia. I am now living my life after having leukemia and dealing with the changes in my body since the transplant. I still go to Dallas once a month for check-ups. I don't see that changing for a while since I am dealing with some issues in my mouth that make eating difficult. We are trying to figure out what is going on and what medications will help fix the problem. I can no longer eat spicy or salty foods because they tear up the insides of my mouth. I am sad that eating french fries is no longer a joy. I can deal with not having hot sauce because I usually over do it before my food comes anyways, but I miss my french fries. Other than my mouth issues I still have problems with chronic dry eye and my skin texture is just not the same. I also now have allergies that I can thank my donor for. Unfortunately those are common side effects that I'm not sure will ever go away. I am having to get use to a new "normal." I did finally write my donor a thank you letter and sent her a small gift to thank her for her selfless act of donating bone marrow to a complete stranger. Hopefully in January I can sign a release of information to hopefully get the chance to know her name and meet her in person. It is funny that I like things that I didn't necessarily like before. I now eat yogurt. That is something I wouldn't touch unless it was mixed with granola because I hated the texture. I also like to eat tomatoes. I eat more eggs and drink more milk that ever before. My hair has also grown in curly. I would just really love to meet her and thank her in person for what she did for me. I can't believe that this time last year I was bald and sitting at home waiting to hear if a donor had been found. I look back at pictures for then and I am amazed at how much has changed in less than a year. When I feel down all I have to do is look at where I was last year and realize how lucky I am to be where I am right now.

1 comment:

Camille, Blake and Pierce said...

Praise God... and what a touching story... I have missed you and glad that you are back and I would love to see a picture of the curly hair. It is amazing to think about how much can change with new bone marrow... amazing.

Keep the updates coming and thank God you are doing good and got to change the name of your blog... good for you.
I want to see and hear more so keep them coming.